MDA is currently funding 77 researchers to study more than 43 neuromuscular diseases at 64 institutions worldwide. But, as I look at the number of research applications currently unfunded, I can’t help but think of the potential we’re literally leaving on the table.  Of all the programs and services MDA offers people living with neuromuscular disease, research may be the clearest path to helping them live longer and enjoy a better quality of life. The investment is paying off — MDA-sponsored research has led to the development of eight therapies that have earned FDA approval.  I (Doug) personally know people who have received amazing treatments from new drugs which are allowing them to see amazing progress.  

In addition to research, MDA funds many care programs including my personal favorite the famous MDA summer camp!

When kids attend MDA Summer Camp, they gain independence as they spend time away from home and, more importantly, time away from their primary caregivers. They learn to accept personal care from someone other than their parents, form lifelong friendships, develop greater self-esteem and confidence, and get the chance to spend time with kids who understand what it’s like to live with neuromuscular disease.

Each camp is staffed with dedicated health professionals and trained camp volunteers who meet every child's medical and physical needs. This team assumes all camper care, including physical and emotional support, providing parents with the opportunity for respite. Camp is available to kids who have been diagnosed with a type of neuromuscular disease covered by MDA’s program.

Please consider supporting MDA with a donation to our local MDA organization.